Inspired!

This song says it all.

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Pregnant AGAIN with Sickle Cell Disease

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One thing that my good friends and family know about me is that I am amazingly stubborn. I like to think that this is a particularly amazing characteristic that I have which has enabled me to remain motivated and tackle obstacles against all odds. And those odds are definitely stacked against me. I am currently 24 weeks pregnant with my second child 😨 I know what you’re thinking. Didn’t I learn my lesson the first time? The short answer is yes...and no. So maybe there is no short answer. But I do know that individuals with sickle cell disease and other chronic illnesses have the same human urges to procreate. I'm not saying everyone desires to be a parent, but generally, we have similar wants, needs, goals and dreams as healthy people. I've accomplished a lot in my short time on this Earth and I am so proud of me for hanging in there through some tough situations. But maybe you don't know about those? Okay, I'll tell you. I wasn't diagnosed with Sickle Cell D...
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A Warrior's Call To Action

Dear Providers, You may not know this about me, but I am a fighter. This means I am going to fight you, tooth and nail, for you to do what's best for me as a patient. I am going to challenge you to see me as HUMAN first. I wear many hats. I am a mom , wife , sister , an aunt , a niece , a daughter , a granddaughter , a cousin , a friend , a confidant , and an advocate. I have qualities you may not be aware of yet. I'm educated, passionate, devoted, outspoken, charismatic, funny, sarcastic and sassy. I just happen to have Sickle Cell Disease. But I spend a lot of my time being emotional and fearful that the first thing you see when I walk into your place of work, is a combination of my skin color and my disease. You make judgements about why I am there. You question if I am truly in pain. You may even accuse me of drug seeking. I will go along with all of your tests designed to rule out imminent death, and will ride along as you do the minimum allowed to void yourse...
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Hmm? What a Pain!

Just to put this out there in the universe, I had no idea someone with sickle cell disease could suffer from pain in the bone marrow. This makes so much sense to me now because I keep telling my doctors I am in pain in my bones and x-rays show nothing. This is definitely something to take to the bank..um or the doctor.
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