One thing that my good friends and family know about me is that I am amazingly stubborn. I like to think that this is a particularly amazing characteristic that I have which has enabled me to remain motivated and tackle obstacles against all odds. And those odds are definitely stacked against me. I am currently 24 weeks pregnant with my second child 😨 I know what you’re thinking. Didn’t I learn my lesson the first time? The short answer is yes...and no. So maybe there is no short answer. But I do know that individuals with sickle cell disease and other chronic illnesses have the same human urges to procreate. I'm not saying everyone desires to be a parent, but generally, we have similar wants, needs, goals and dreams as healthy people. I've accomplished a lot in my short time on this Earth and I am so proud of me for hanging in there through some tough situations. But maybe you don't know about those? Okay, I'll tell you. I wasn't diagnosed with Sickle Cell D...
Dear Providers, You may not know this about me, but I am a fighter. This means I am going to fight you, tooth and nail, for you to do what's best for me as a patient. I am going to challenge you to see me as HUMAN first. I wear many hats. I am a mom , wife , sister , an aunt , a niece , a daughter , a granddaughter , a cousin , a friend , a confidant , and an advocate. I have qualities you may not be aware of yet. I'm educated, passionate, devoted, outspoken, charismatic, funny, sarcastic and sassy. I just happen to have Sickle Cell Disease. But I spend a lot of my time being emotional and fearful that the first thing you see when I walk into your place of work, is a combination of my skin color and my disease. You make judgements about why I am there. You question if I am truly in pain. You may even accuse me of drug seeking. I will go along with all of your tests designed to rule out imminent death, and will ride along as you do the minimum allowed to void yourse...
It seems that I have slept my life away this week! Starting with the fluids and meds on Monday, things have just gone downhill from there. On another note, when I went to my appointment with my hematologist, I had to get on the scale. Yeah I think it was broken because there is no way I way that much! Okay. So maybe I do weigh as much as it said! Which means I am the heaviest I have ever been in life and that has to end. [Insert exercise here]--I wish it was this easy! So today, when my husband was on his way out the door to walk the dog, I came with. It was pure torture. He runs these blocks every morning but I only walk to my car. Shame I know. This weight is definitely motivation to get moving because I do not want diabetes or any other problems that may come with being overweight. And now it's time for the oxymoron of this post, I made a fudge chocolate cake. I am totally screwed when it comes to getting rid of these pounds.
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